sickle cell

A new statewide dashboard aims to streamline data collection on patients with the genetic blood disorder.

The camp is one of less than 50 across the country for kids with the genetic blood disorder.

The study will test the effectiveness of Propranolol, a beta blocker typically used to treat heart problems, hemangioma, migraines and anxiety.

Most states don’t have basic information on sickle cell patients. This means these patients’ needs aren’t taken into account when it comes to federal and state-level public health planning and budgeting.

One peer-reviewed study examining death rates of sickle cell patients between 1979 and 2005 found that while child death rates plummeted during that period, adult death rates increased 1 percent every year.

Sickle cell disease is a genetic disorder that affects nearly 100,000 people in the U.S. It’s the nation’s most common genetic disorder, but is often overlooked when it comes to resources.

One in every 13 African American babies carry the sickle cell trait and one out of 365 have sickle cell disease, according to the U.S. Centers for Disease Control and Prevention.